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Below are links to the IAMRARE Terms of Use and Privacy Guidelines. The purpose of these documents is to outline your rights and responsibilities when using the platform. These documents include: 1) Standard policies for all studies on this platform, 2) A privacy statement that details how your data can be used, 3) Information outlining the unacceptable uses of the platform, and 4) Information about how to address questions and issues.

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You are at least 18 years of age, the age of majority in your state, province or country, and able to consent on behalf of yourself and/or an individual that you have legal responsibility for. *

You agree to support the Platform’s research activities by providing truthful, appropriate information and to not do anything that will put the Services or the information in the Platform at risk. *

You understand that NORD will use reasonable efforts to keep the information you enter on the Services safe, but no data transmissions over the Internet can be guaranteed to be 100% secure. The information you provide will be available to authorized users at NORD for platform maintenance and research activities, as well as to the sponsor of the studies you consent to participate in. *

You agree to the Terms and Conditions & Privacy Policy *

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An activation link will be sent to your email. Click "Next" to continue.*

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An e-mail with a verification link has been sent to you. Please click the link to complete verification. If you do not receive the e-mail, please check your spam/junk folder. You may close this page.